November 19th 2024.
As the days grow shorter and the weather turns colder, I find myself struggling more and more. As a person with osteogenesis imperfecta, also known as brittle bones, the dampness and rain only add to my aching bones. It's during this time of year that my daily activities seem to take longer, I feel drained of energy, and even my dexterity is greatly affected - making simple tasks like holding a mug or a pen a real challenge.
But it's not just the physical toll that the cold weather takes on me. As a Disabled person, I also have to think about the added expenses of heating my home. It's not something that most people have to worry about, but for us, it's a necessary cost.
And then there are the dangers that come with the changing of the seasons. While the golden leaves falling from trees may be a beautiful sight to some, for me, they can be quite hazardous. Just the other day, I was out in my wheelchair and a pile of leaves covered up a large pothole, almost causing me to be thrown out of my chair. It's moments like these that remind me of the unique challenges that come with being Disabled.
And speaking of challenges, one of the biggest ones I face during this time of year is the lack of independence. For example, I recently went to the supermarket in my power-wheelchair, only to find myself trapped there for nearly an hour due to a sudden downpour. It's not easy to navigate in rainy weather, and it only adds to the feelings of loneliness and frustration.
But it's not just the weather that can limit our independence. As Disabled people, we also have to worry about our support assistants or caregivers getting sick during the cold and flu season. What may be a minor sniffle to someone else can be life-threatening for us. So when we ask you to wear a mask or wash your hands, please understand that it's not just for our own safety, but also for yours.
And let's not forget about the decreased number of people out and about during the winter months. As a Disabled person, I've always relied on the help and support of strangers when I'm out in public. But with fewer people around, I worry that I won't be as lucky next time I need assistance.
And let's not even get started on how much harder it is when it gets dark earlier. Poor street lighting and badly maintained pavements only add to the difficulty of going out. It's a constant battle just to do everyday tasks that most people take for granted.
It's important for non-Disabled people to understand the added challenges that we face during this time of year. We may already be subjected to stereotypes and misconceptions, but the truth is that external barriers create disabling barriers for us. So when I decline an invitation or seem less productive, it's not because I'm lazy or incapable, it's because I'm simply too exhausted.
I want to urge non-Disabled people to show more patience, empathy, and understanding towards us during this time. We still want to be included in holiday celebrations, spend time with friends, and enjoy the changing of the seasons. We are just like anyone else, with an added layer of identity to consider. And we need your support and inclusivity now more than ever.
So if you know a Disabled person, reach out to them and offer your help or ask if there's anything you can do to make their lives a little easier during this time. Let's work together to break down the barriers that make this season even more challenging for us. And remember, we are not defined by our disabilities, but by our resilience and strength.
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