August 7th 2024.
Colin Farrell recently shared about his son's rare illness in a heartfelt interview. He made a plea to the world to treat his son, James, with kindness and compassion as he struggles with a neurogenetic disorder. James, now 20 years old, is Colin's child with ex-partner Kim Bordenave, and they welcomed him into the world in 2003.
It was a difficult journey for the family when they found out that James has Angelman syndrome, a complex neurological condition. This disorder can cause various challenges for James, such as movement disorder, difficulty swallowing, slow brain wave patterns, epilepsy, and breathing problems. As a father, Colin became emotional as he talked about his son's condition for the first time in an interview. He also announced the launch of the Colin Farrell Foundation, which aims to support adults with intellectual disabilities and their families.
Colin shared that he wants the world to be kind to James and treat him with respect. He expressed his pride in his son, calling him "magic" every day. Becoming a father in 2003 has been a life-changing experience for Colin, and he now understands the importance of providing support and resources for individuals with disabilities.
As James turned 21, Colin realized that he would soon be on his own, without the same level of support and care he had received as a child. This led to his decision to launch the foundation, after years of contemplating about it. He wants to ensure that young adults with disabilities are not left behind in society and are given an opportunity to integrate and thrive.
Colin also shared the challenges they faced when James was a baby, and he was not reaching developmental milestones like sitting up, crawling, or walking. He recalled the misdiagnosis of cerebral palsy and the moment when another doctor suggested testing for Angelman syndrome at the age of two.
The proud father became emotional as he remembered the day James took his first steps, just before his fourth birthday. Many individuals with Angelman syndrome are unable to walk, making it a significant achievement for James. Colin also highlighted the hard work and determination James puts into everyday tasks, such as taking off his clothes and socks. He sees his son as a constant reminder to appreciate the marvels of life, including the human body and its capabilities.
Apart from James, Colin is also a father to his son Henry, with actress Alicja Bachleda-Curuś. He considers his children to be his biggest joys and is grateful for them every day.
According to the Mayo Clinic, Angelman syndrome is caused by a genetic change and can lead to developmental delays, speech and balance problems, intellectual disability, and seizures. The signs of this condition usually start to show between 6 and 12 months of age, and individuals diagnosed with it tend to have a joyful and excitable personality.
While there is no cure for Angelman syndrome, individuals can live close to a typical lifespan with proper management of medical, sleep, and developmental issues. The Colin Farrell Foundation aims to provide support and resources for those affected by this condition.
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