September 22nd 2024.
At the Cure Usher Ball, Emmerdale stars Laura Norton and Mark Jordon took a moment to speak with us about their dedication to raising awareness for Usher Syndrome, a rare and incurable genetic condition that affects both hearing and vision, and in some cases, balance. This cause is especially close to their hearts as their own two children, Jesse and Ronnie, were diagnosed with Usher Syndrome in 2023.
The actors expressed their gratitude for an EastEnders storyline that brought attention to Usher Syndrome earlier this year, as their character Britney Wainwright was also diagnosed with the condition. Laura and Mark were impressed by the soap's ability to reach millions of viewers and spark conversations about Usher Syndrome.
"It meant the world," Laura shared with us, "Nobody does it like a soap. It was incredible to see so many people talking about Usher Syndrome and raising awareness." Mark added, "The fact that it was featured in the headlines the next day was a huge help. People were eager to explain what Usher Syndrome was and why it was important to the storyline."
The Cure Usher Ball was a special event for Laura and Mark, as they were joined by their family, friends, and Emmerdale co-stars. Cure Usher founder Jo Milne and chair Steve White were also in attendance, and they were equally thrilled about the impact the EastEnders storyline had on raising awareness for Usher Syndrome.
Jo emphasized the lack of awareness surrounding the condition, stating that many people have never even heard of it. "It's not about placing blame," she said, "It's just that there isn't enough information out there. And yet, there are 11,000 people in the UK living with Usher Syndrome. So, this kind of exposure is crucial in making a difference and improving lives."
Mark and Laura echoed Jo's sentiments and expressed their hope that the EastEnders storyline was just the beginning of more awareness and education about Usher Syndrome. They believe that the more people know about it, the better equipped they will be to support those affected by it.
The Cure Usher Ball was a huge success, raising funds for the charity Cure Usher and bringing together a community of supporters who are passionate about making a difference in the lives of those living with Usher Syndrome. Laura and Mark are grateful for the soap world's role in raising awareness for this important cause, and they hope to continue their efforts in the future.
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